Rett Syndrome Treatments

Medication

• Anticonvulsants to control seizure activity
• Stool softeners or laxatives if constipated
• Drugs to help with breathing
• Drugs to ease agitation
• Histone deacetylase inhibitors—Scientists are investigating this group of medications to treat Rett syndrome.

Nutrition Support

• Small, frequent meals
• Supplements
• Tube feeding , if the patient is unable to consume enough food
• Fluids and high- fiber foods to help control constipation

Rehabilitation Therapies

• Occupational therapy—to help patients learn to perform daily activities, such as dressing and eating
• Physical therapy—to help patients improve coordination and movement (can sometimes prolong the ability to walk), braces and splints may be recommended
• Speech therapy aids—to build communication skills
• Social workers—to help a family cope with caring for a child with Rett syndrome

Techniques for Limiting Problem Behaviors

Keeping a diary of your child's behaviors and activities helps determine the cause of agitation. The following may help to prevent or control behavior problems:

• Warm baths
• Massage
• Soothing music
• Quiet environment