I was diagnosed at age 19 and am now 75. Dexadrine is the only drug that works for me. My wife had to discipline my 3 kids as I would only get weak and fall even when I raised my voice. I cant tell a joke or speak in public. Whenever I am threatened by someone I am unable to stand up for myself and have to walk away.
Sports and parties were out which meant I didn't have a lot of friends. I wouldn't wish this condition on anyone. Laurie, Nova Scotia
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Hello Laurie
Thank you for sharing our story. I think most of us know what narcolepsy is but I had to look into Cataplexy myself. For the benefit of our readers (from the National Sleep Foundation) -
Cataplexy is a sudden and uncontrollable muscle weakness or paralysis that comes on during the day and is often triggered by a strong emotion, such as excitement or laughter. Without much warning, the person loses muscle tone and can have a slack jaw, broken speech, buckled knees or total weakness in their face, arms, legs, and trunk. A person experiencing total cataplexy stays awake and is aware of what is happening, but cannot move. These episodes last up to a minute or two, and some people may fall asleep afterwards. The frequency of cataplexy episodes varies widely among people with narcolepsy. Some individuals avoid emotions that may bring on cataplexy.
I hope you have had good support, neither of these conditions is easy to live with. Thank you for Sharing!
Best,
May 29, 2019 - 1:02pmSusan
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