I've suffered with chronic pelvic pain for nearly eight years. I've been told I'm probably dealing with two pain issues, one being vulva or 'vestibule pain, and perhaps a nerve entrapment. Have been to many doctors over the past eight years; gynecologists (3), physical therapist, neurologist, acupuncturist, chiropratcor, and others . It is really painful to sit. Many medications tried (neurontin 3600 mg., lyrica 600 mg, cymbalta 120 mg. daily, valium, etc, etc, etc. Have also taken 3 guided pudendal nerve injections with no relief. My pain level on a scale of 1 to 10 is a 9.
Have been asked to make an appointment with Dr. Andrew Goldstein for diagnosis. Has anyone been to him?
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Good post. I study something tougher on totally different blogs everyday. It should at all times be stimulating to learn content material from other writers and follow a bit something from their store...
June 23, 2011 - 11:23pmThis Comment
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February 10, 2011 - 10:43amAlison Beaver
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I have..he is good....getting a vestibulectomy in march and will update ...you should check out his website though
January 12, 2010 - 12:39pmThis Comment
Hey Adotfriz ! I read with great interest your post "My Experience and Treatment with Vulvodynia and Vestibulodynia" I am just another victim of this horrifying chronic disease ! and... you know how it feels like..:) Please, can I have your e-mail address... I want so badly to talk with you.. or I can post my e-mail address, just in case you don't want yours to become public! Thanks.
February 10, 2011 - 4:43amThis Comment
Judi,
I'm so sorry that you've dealt with this painful journey for so many years.
Dr. Goldstein, as I am sure you were told, is the Director of the Centers for Vulvovaginal Disorders. Have you visited their web site? It's here:
http://www.cvvd.org/
They also link to a 20/20 interview that ABC's Dr. Tim Johnson did with Dr. Goldstein, who also is the author of "Female Sexual Pain Disorders: Evaluation and Management ," the first textbook devoted completely to the diagnosis and treatment of conditions that cause pain during intercourse. It was just released in March of this year, and they link to it on Amazon here:
http://www.amazon.com/Female-Sexual-Pain-Disorders-Evaluation/dp/1405183985/ref=sr_1_1?ie=UTF8&s=books&qid=1236830256&sr=8-1
Are you in an area of the country where you can visit the Centers?
I added Dr. Goldstein's name to your post's title so that others who have seen him might find your post and write about their experience. In the meantime, EmpowHer also has some questions and answers that might be helpful to you:
https://www.empowher.com/community/share/my-experience-and-treatment-vulvodynia-and-vestibulodynia
https://www.empowher.com/community/share/full-vulvodynia-journey-my-emotional-tracks-cure
https://www.empowher.com/community/share/additional-vulvodynia-resources
October 5, 2009 - 9:27amThis Comment