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i have a 2 yr old dauthghter with brain cancer

By January 26, 2011 - 1:34am

for the past 6 months i havent slept through the night, not even once....i dont know what to do with myself anymore... people tell me.."its been 6 months ,you have to move on and live your life" but i just cant.. i cant move on from the fact that my daughter has brain cancer, never in a million years did i think that my baby would be the one, she has nausea, she has lost her hair, she does chemo every week and has to take 3 different medications every night, she cant go to birthday parties with lots of people due to her blood counts being unpredictable, her balance is way off and its very nerve wracking to bring her outside for fear the she will fall... she is always very pale and fragile looking and she is always very tired and she is very calm ..... on the other hand she is an amazing baby, she has always been very advanced, she knows how to count to 13 in english and 100 inn spanish and 3 in chinese, she also knows her abc's and what sound every animal makes, she is extremely funny and smart and very resiliant, i have an amazing child that teaches me what strength really is, and when she is awake and laughing i am okay, but when she falls asleep and im alone i stay up until 5am or whenever my body has had too much.... i fall apart at night and i am never truely happy, i love my husband dearly and he is always there for my daughter and i... it is hard to talk to other people that love hailey about her condition because we all just fall apart... i need to talk to someone, i need to talk to someone

By May 4, 2011 - 10:12am

My eyes well with tears for you as you are experiencing a nightmare in which you are awake to live through bit one thing struck me as important that you may not see within yourself Strength and the ability to see some good despite it all. You have every right to feel terrified and alone as your family has been tramatized,Just remember to continue to take care of yourself and breath.

May 4, 2011 - 10:12am

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