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Seems only 300 cases world wide since 1940s but does anyone know any details about this cancer or any staging
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Pat,
thank you for all your research....I will go to case study from 2013 and see if I can find staging info from contact info...mother has lost 50 labs, it in lymph gland's and vessel's...I would like to know the progression as it will assist me in helping her.
I have been drawn to your name on the page to pray for you. Please allow me to know a little more about yourself...I feel you are a very spiritual person, even prior to diagnosis ...again thank you!
September 17, 2014 - 6:33amThis Comment
Hi Deborae - Thanks for your comments and kind remarks. I researched multiple sources and was unable to find any references to staging. I am truly sorry to hear that your mom has lost so much weight and that the cancer has metastasized.With a rare cancer like hers it's going to be hard to find information in regular search engines. Google has another search engine named "Google Scholar" which you can use to reach clinical articles including case studies. If you want to really go in-depth into understanding your mom's cancer then this can help you. For some people this is the right thing to do, for others it's way too much information and too hard to read the cold, clinical descriptions. Use your own best judgement on what's right for you.
As for me, I'm alive and well with a rare blood cancer that previously was terminal for 90% of those who got it, but is now treated with a breakthrough targeted therapy, the fastest drug in history to be approved by the FDA. I'm grateful for the second chance at life that I was given and appreciate those who came before me and went through the development process and clinical trials that ended up enabling me to live. I devote a lot of my time to helping other people who also have my rare cancer so they can better understand how to live well with ongoing treatment and side effects, expenses, and so forth.
Take care and thanks for looking out for your mom, I'm sure that means a lot to her.
Pat
September 17, 2014 - 6:46pmThis Comment
Pat,
thank you for the information...I do like to learn all I can at this point. I am glad to hear things are going better for you as well and I pray this continues. It takes those like yourself with a true calling to understand the emotional stress of cancer.
Should you have information on assistance with expenses please forward...she has insurance, but no secondary....
Again, you are a light in my path...I am here for YOU, as well.
Deb.
September 18, 2014 - 1:06pmThis Comment
Hi again Deb - The EmpowHER site has a wealth of resources to help you and your mom. Please see this article Coping with Cancer's Financial Burden: How to Find Help Right Now for information on various ways to seek financial support. Hope that helps! Pat
September 18, 2014 - 6:09pmThis Comment
Hi Deborae and Welcome to EmpowHER!
Thanks for your question. Are you asking for yourself, or for someone else?
Eccrine porocarcinoma, a malignancy of the eccrine sweat glands, is extremely rare.This is most commonly diagnosed in people ages 50-80. There is not a lot of published data on eccrine carcinomas. I could not find any data in several of the reputable oncology information sites and I would imagine it's been hard for you to research this as well.
According to MedScape, Mohs micrographic surgery is becoming the mainstay of therapy for eccrine carcinomas. Radiation therapy has been used in select cases while chemotherapy has not been used extensively. This cancer has a tendency to recur and can also spread (metastasize) to other parts of the body.
I was able to find a clinical case study from 2013. The study authors noted that if treated early, eccrine porocarcinoma can be curable through surgery. In the metastatic phase, the prognosis is often poor because this cancer doesn't respond well to anticancer treatment.
I personally live with a rare cancer and know all too well how difficult it can be to obtain information. Please let me know if this helps and if I can help further.
Best regards,
Pat
September 15, 2014 - 5:51pmThis Comment