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with further testing he has a very rare cancer usually found in children 10 -26 Ewing sarcoma.after just 1 week of chemo he lost 22.7 lbs. & his mass grew 1 centimeter.he was confused and by the end of the week couldn't walk on his own He fell & ended up in hospital where we were informed there wasn't anything else to be done ,so we came home with hospice care .that was Dec.28th.he has since been able to walk again & isn't confused.but he has started having trouble with bowels.the nurses with hospice told me pancreatic cancer effects the bowels.they believe he has a tumor there he isn't a candidate for colostomy,& I was told they would increase pain meds & eventually his organs will shut down...I'm so heartbroken he is the love of my life we have been married 42 years this past Dec. I don't want him to suffer can anyone tell me if what I've been told is correct?
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Hello Anon
Thank you for writing - we are so sorry to hear what you and your husband are going through - he is still a relatively young man.
The outcome for pancreatic cancer is often not good- but we cannot tell you if he is terminal or not. The good news is that he is showing improvement cognitively but falls like this can cause temporary confusion so that's normal.
Since he is not a candidate for a colostomy, have you enquired about clinical trials that he may qualify for? If not, please ask his medical team if there is anything that can be done in this area.
We look forward to hearing back from you-
April 5, 2019 - 4:41amBest,
Susan
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