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Looking for quidance with Fibroid and dislocated IUD

By Anonymous April 15, 2011 - 2:02pm
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I am 42, I have a 6mm size fibroid in uterus. My bleeding last from 2 weeks to one month, it is light but very frustrating when I am not prepared for it. My husband knows to take the kids and not ask questions anymore when we are out and I say " I need to go NOW". I also have really bad cramps, mostly after my period and sharp pains every so often where it makes me double over. I have had an IUD in for the past 5 years, I wanted it removed but they at first could not find the string, then I had an ultra sound, internal and external they could not find it and said it must have fallen out. I finally had an x ray taken and low and behold there it was right in the middle but not in my uterus anymore but now in my pelvic area. I really have hated my IUD from the beginning and I think it was trying to escape my dislike of it. My sister also has fibroids which have been large as well and her first procedure was the UEA and then a year later she had a Myomectomy.

My doctors have suggested the following,

1. I could have an Endometrial Ablation which would take care of the bleeding and the fibroid but not the IUD and because of the size it is more than likely that it will come back soon.

2. A hysterectomy ( I hate that word and have asked them to never repeat it to me again. I am not ready or willing to do this.)

I need to know if anyone has ever had this lovely combo before and if they know of a good no make that great Dr. in Arizona that specialists in this type situation. I have a call into my Dr.'s office asking them to set up an MRI so that I can really tell if I have more than one large fibroid or if there are more hiding. Also I want to make sure I have it all down so a new Dr. can have all info in front of them. I just want to feel normal again so if anyone can help I am up for it. Thanks so much.

Add a Comment7 Comments

I too am being told that due to the amount of Fibroids (not sure of sized) I have to possibly have a hysterectomy. I am 42 and I suffer severe pain and bleeding associated with the fibroids. I am in Canada, so not sure if there is any doctors one knows of in the Province of Alberta that might *once I see the Obgyn* that I am to see. I am also fearful and unsure...

May 18, 2012 - 9:49pm

Hi Anonymous,
Here's another highly recommended doctor - Dr. Paul Magtibay, you can see his profile on the site.

Good luck, I really hope one of these doctors work for you. Please keep us posted.

April 17, 2011 - 8:07pm
EmpowHER Guest

Thank you all for your help, I will look into these Dr's and hopefully can get into them soon so I can take care of this before my kids are out of school for the summer. I will keep you posted as to what is the outcome. Thanks again.

April 16, 2011 - 10:38am
EmpowHER Guest

Highly recommend this doc: http://www.scottsdalewomenscare.com/

April 15, 2011 - 4:33pm

Dear Anonymous:

You have come to the right place! I applaud you for searching out other options beyond a Hysterectomy. There are so many more options now for Uterine Fibroids including a technology called Focused Ultrasound which you may want to check out, here is an educational site about this technology and if you are a candidate. http://fibroidrelief.org/
I believe I can help you with some physician referrals here in Phoenix, please give me a few days and I or Angelica will get you some referrals.

More to follow shortly-hang in there

Kelley Howard

April 15, 2011 - 4:05pm

Hi Anonymous,
I'm sorry that you are dealing with all of this! I haven't had an IUD and fibroids combo, but have had ovarian cysts, uterine fibroids and endometriosis. I highly recommend Dr. Hibner and Dr. Desai at the Advanced Gynecology and Pelvic Pain at St. Joseph's Hospital in Phoenix, AZ. They performed two of my surgeries and really helped me out.

Michael Hibner, MD, PhD, FACOG, is the Director of Division of Advanced Gynecology and Pelvic Pain at St. Joseph’s Hospital and Medical Center.

Nita A. Desai, MD, is a Gynecologic Surgeon in the Division of Advanced Gynecology and Pelvic Pain at St. Joseph’s Hospital and Medical Center.

I agree, you should get a second opinion and stay away from a hysterectomy if at all possible. Again, sorry you're in so much pain but do hope you get some help soon.

Keep us posted and let us know how you are doing.

April 15, 2011 - 2:54pm

Welcome to EmpowHer. I can understand your concerns about choosing the treatment that is right for you. I am not from Arizona, so unfortunately, I cannot give you a recommendation, However, other members of the community from the area will be offering recommendations of their personal physicians, Keep a look out for further comments with recommendations. Good luck in finding the right doctor.

April 15, 2011 - 2:39pm
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