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Does anyone suffer from Trigonitis or inflammation of the bladder?

By October 30, 2008 - 3:01pm
 
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If anyone suffers from this, PLEASE contact me!! I've been having bladder and urinary pain for months. My urologist doesn't think I have Interstitial Cystitis, but I do have Trigonitis. I can't find any information on this. PLEASE HELP!!

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EmpowHER Guest
Anonymous (reply to peacebaby)

Hi peacebaby,
I was so happy to read your post, i think the hormon could be solution, because when I stopped taking Antibaby tabletts after that symptoms were showned
When I have my menstruation I fell better, weird!! I have been suffering for 3 years and fed up that noone knows the solution , it is 2011, AIDS and every kind of diseases can cure, there must be something to solve our problem.
What do you think hyaluron acid treatment?
sorry for my english, i am from Middle Europe.
Violet

August 10, 2011 - 4:30am
(reply to Anonymous)

Here's a link addressing Cycystat

http://www.hindawi.com/journals/au/2010/269254/

December 11, 2011 - 10:48am
(reply to Anonymous)

Not sure Violet about the Cycystat..haven't been able to find anything on the web and haven't talked to my urologist about it either. I do know that when I started the Sotto Pelle Bioidentical hormones..it wasn't unbearable having sex with hubby..where before it was excruciating..my urologist and OB/GYN both said they've been going to conferences and the biohormones seem to be a possible solution..time will tell :) I wish you a solution and relief from this horrible chronic condition..as one member here said..what works for some..doesn't for others...so we must not give up because one thing that works for some doesn't for us..there's always hope....Peace

December 11, 2011 - 10:39am
EmpowHER Guest
Anonymous (reply to peacebaby)

I came across this message board for Tigonosis whilst searching for something else and quickly took a look as I too have Trigonosis. I have not got the time to read through all the comments, but the ones I did read said nothing much about DRINKING LOTS OF WATER.

I was lucky at the time of my diagnosis to be seeing a very good urologist in Sydney, Australia. After all the tests he diagnosed I had Trigonosis and that little was yet known of the cause. He advised me to drink plenty of water every day and avoid spicy food, coffee and alcohol as this irritates the inflammation. I do try to drink over one and half litres of water a day, sometimes I manage two litres. YEP IT WORKS for me. At the start I kept running to the loo to pee, but it was not a painful urge like before. The body seems to get used to drinking mor water and you get used to it and the awful aching and urging of wanting a pee all the time has stopped. I do not eat too much spicy food anyway, but love coffee and alcohol. I have cut back a lot, but on the times I do have a lot of coffee or a relaxed evening drinking alcohol....the following day Trigonosis comes back with avengence. Some days drinking water is such a bore that I stop for a few weeks....my symptoms always come back on these days. Within one day of DRINKING WATER again, my symptoms ease and the Trigonosis goes away. It can be hard going if you are like me to try to drink up to 2 litres of water a day, but believe me when I manage just one litre daily I am fine. Why not try it...it if free and natural and you could only gain from it. Carole

August 8, 2011 - 6:48am
(reply to Anonymous)

I also drink as much water as I should without drinking too much..as too much can mess up electrolytes, my granny when she was alive did that and messed up her electrolytes ! I've read as many comments as I can..and there's no one certain treatment that works for everyone..it seems at this point in time the Dr.s too aren't on board with helping us women who suffer with the debilitating condition. No cure and they've known about it since the early 1920's ..that's amazing...boy as soon as men couldn't get an erection they came out with a pill to get them fixed right up. We women can't have sex with this condition it hurts so bad..but we must grin and bear it !!

December 11, 2011 - 10:33am

Hello...I've been researching on the internet and came across this site...I was diagnosed with trigonitis...I'm 61 gone through menopause and 7 mos ago started bioidentical hormone cream..was taking too long so I had the pellets inserted and do the progesterone sublingual..mainly had this done for bladder symptoms..have been on macrodantin maintenance for 10 yrs..just had a cystoscopy yesterday..that will be at least the 6th one in 10 yrs..the Dr.s are now learning that trigonitis may be hormone connected and there's hope for cure or for the trigone to return to normal in time...taking the bioidentical hormones gives me hope. I just read about the baking soda and tums and I'm going to try that...I'm supposed to start on a different antibiotic..Trimethroprim for 3 mos...then Macrodantin...however in the last 10 yrs of taking the antibiotics..I'm not cured..only get very brief periods of relief...I'm hoping the hormones will be the cure.

July 28, 2011 - 11:07am

I was just diagnosed with this condition, Trigonitis, my Urologist recommended seeing my gynecologist and getting a very low dosage of hormones. He is pretty sure it is related to menopause.......

March 16, 2011 - 10:37am
EmpowHER Guest
Anonymous

I started with a urinary tract infection, doctors gave me several courses of antibiotics, the urine samples showed no infection, but i still have the symptoms of cystitis.
I went to several urologist, one said I had IC, I did not agree with this, I then went to another uroligist who diagnosed me with ascending urethral trigonitis. I have have been suffering for 10 years, sometimes the symptoms fell better, and sometimes worse. I usually always have the feeling of urgency and sometimes burning after urination. I have been doing some research on Pelvic floor disfunction, and now the specialist feel that this may the cause of the trigonitis which show the same symptoms of IC. I have been taking 2mg gram of valium, magnesium and half tablet 5mg of endep, which is helping, antibiotics will not help at all, all it does it gives you severe thrush which makes the trigonitis symptoms worse, unbearable.
Please check if you have pelvic floor disfunction as this causes symtoms of IC as well as trignonitis.
I am now being refered to a physiotherapist who will be able to help me, firstly testing will be done to check to pelvic floor mucles and there is simple therapy to help relieve the problem.
I hope this will help someone, as i have been suffering for 10 years and every specialist i have been to keeps putting me on different antibiotics for months at a time. I even had a historectomy due to this, they thought it would help eleviate the problem, but it didn't.

March 13, 2011 - 4:18pm
(reply to Anonymous)

As I have written before many many times and insisted, antibiotics don't work. I have discussed IC/trigonitis in depth with the best of the best urologists of my country. People from all over come to this hospital to see them. Medication via the urethra only works. The bladder is an organ that can have medication given to it straight away, to "hit the spot". Dont take anymore antibiotics, you are damaging your kidneys and doing nothing for your bladder. CYCYSTAT is the medication that I was treated with, and I am fine now. No pain, no frequency, no fibromyalgia, no pain in the pelvic floor muscles. Believe me, IC/trigonitis gives you all sorts of weird pain that you would never imagine that your bladder can cause. Talk to your urologist about weekly therapies via the urethra, first get checked for any STD's as they are a major cause of this, especially chlamydia. Dont get trippy about researching pelvic floor muscles etc.etc., its all because of the trigonitis. I have made this damned thing a purpose for helping other women, I have researched it, talked and talked to docs who agree with the fact that antibiotics do NOTHING. Each country I suppose deals with this differently, but look into this medication. It's very expensive if your insurance doesnt cover it, so maybe that's why some docs like to turn their cheek to this. Stop the meds, stop the antidepressants, they will just make you feel worse. For any more info, just give me a shout. I know what you are going through. By the way, the line ups for these weekly therapies were huge, all women of all ages.

March 14, 2011 - 3:58am
EmpowHER Guest
Anonymous (reply to leanne)

Hi Leanne,

Can I get in contact with you somehow?
Thank you in advance,
Regards,
Kata

April 2, 2020 - 12:23am
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