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My daughter is 18 and she has paused her life because of this condition. She is not going to school and afraid to get the pain in public places. Is it normal for people to feel disable and not living a normal life? How do I encourage her to live with the pain until she finds a solution?
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Hello Anonymous,
Welcome to EmpowHER. Thank you for coming to our community for guidance regarding your daugher. I am so troubled to hear that the pain associated with vulvodynia is preventing your daughter from living her life fully.
Vulvodynia, simply put, is chronic vulvar pain without an identifiable cause. The location, constancy and severity of the pain vary among sufferers. Some women experience pain in only one area of the vulva, while others experience pain in multiple areas. The most commonly reported symptom is burning, but women’s descriptions of the pain vary.
I want to share a link to self-help tips provided by the National Vulvodynia Association.
http://www.nva.org/for-patients/self-help-tips/
Anonymous, has your daughter sought medical treatment. The Mayo Clinic website lists current treatment options. Please take a look. http://www.mayoclinic.org/diseases-conditions/vulvodynia/basics/treatment/con-20020326
Would she consider joining a support group or talking with your physician who might be able to recommend a counselor in your area — one with experience in helping women cope with vulvodynia?
Anonymous, your daughter should not have to live with the pain. Rather, find ways to get relief.
I hope this information offers some help to both of you.
Regards,
September 21, 2016 - 8:27amMaryann
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Thanks so much Maryann for your time and valuable information
October 3, 2016 - 3:02pmWould there be any teen like her suffering from the same condition?
It will be good to know so that she can join the support group.
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