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Due to have a hysterectomy but am scared to death after viewing a video about side effects!

By April 5, 2009 - 4:04pm
 
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I have generally accepted my doctor's recommendation that I have a hysterectomy due to a very large uterine fibroid (15 cm) that is displacing my bladder. I also have cysts on my one remaining ovary so that's supposed to come out too. But after viewing a video link from your website, I don't know what to do. It was reported that 80% of women experience serious quality of life issues afterwards. I don't like those odds! Are there women out there who don't have serious problems after a hysterectomy? The link I viewed was from a Share story called Female Anatomy: http://hersfoundation.org/anatomy/index.html. I also have a history of breast cancer.

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To the last two Anon posts: Excellent points and info!!! Why did my GYN (as millions of others) state the same thing; i.e., "Your sex life will be even better!"? Of course! No more bloody times of the month. How stupid of me. Those women who experienced pain before a Hyst., and then do not - well, that is great, but there were alternatives to that pain without taking the uterus and ovaries. I bet the sexual desire and orgasms were dramatically changed, and my "bet" is many just won't talk about this important factor. They concentrate on the physical pain reduced, but an emotional pain replaces this with the lack of desire to have sex and the lack of orgasms. Hmmm... what about the pain for the spouse afterwards? My poor husband has pain now. He has a wife who once promoted love making, and now - after the Hyst. could care less/no desire to make love. How dare these 'Misogynists' get away with this. Oh, and thank you, Anon. I learned a new word. I looked this up in the 'American Heritage Dictionary'. 'Misogyny' - N. - "Hatred of women". (Wow...) Also - 'Misology' - N. - "Hatred of reason, enlightenment" - (Go figure...) Now, I think every GYN needs to post on their 'door' - "Gynocologist/Misogynist" (The ones who promote/scare women into/lie about Hysterectomies).

On a final note - I am in firm agreement with a law being passed in every state that females must, by law, watch the Hers Video (even enhanced version). If not, there are heavy criminal felony charges imposed to the doctor. I mean it. This is so late for this to have been done. Think of the millions of women who would not be suffering right now/have their lives ruined - along with loved ones(it happened to me; therefore, I can speak about this from 'first hand' experience and so can my husband); so - laws have to be put in place. As I said before - "Yesterday"... (Also - it makes me so sick and sad to read about that devil of a doctor, Marion Sims. Of course, I use the same term as the word "devil" when I speak of the GYN who did this to me. Yet - "devil" is putting it politely...) Oh, for God's sake - anyone reading this and considering a Hyst. - don't, please don't do it!!!

April 7, 2010 - 7:04pm
EmpowHER Guest
Anonymous

Read over 600 threads of "sexual dysfunction after hysterectomy" http://www.hystersisters.com/vb2/forumdisplay.php?f=202
if you are sceptical that it doesn't change your sex life. The other point I'd like to make is that doctors try to point out that sex is better because you can have it any day of the month after a hysterectomy. Don't confuse quantity with quality. Also if sex is painful before a hysterectomy, and then it no longer is painful after a hysterectomy, that's all it is . No longer painful. It is not going to be earth shattering if you don''t have your uterus.

April 7, 2010 - 4:56am
EmpowHER Guest
Anonymous

I was the anon poster who wrote on the 6th April about my mother. Sorry it was do badly written but I had my son trying to turn off my monitor and play with my keyboard while typing. First I just wanted to add that I had to see a gynecological oncologist about the hysterectomy as my OB would not be performing it. Well one one the first things she said to me was that "sex would be BETTER after a hysterectomy". Of course my mouth dropped. And this was coming from a woman!
And another point that I would like to make is that we have a family friend who was diagnosed with prostate cancer. Do you know want his doctor said to him? You wouldn't want an operation because it could adversely affect your sexual functioning and your over all quality of life!!! Oh they are so honest with men aren't they! It just confirms my belief that gynecologists are misogynists. Read about the history of gynecology and you will see what I mean. The "father" of gynecology J Marion Sims used to buy black slaves and operate on them without anesthetic until they died. Some poor women endured up to 30 operations. So is it any wonder that doctors treat women like they do to this day?

April 7, 2010 - 2:38am
EmpowHER Guest
Anonymous

First it's important to know that you never need a hysterectomy for fibroids unless you have the wrong doctor. The size of your fibroid is not huge, but even if it were, it could still be removed (a surgery called myomectomy), without removing your uterus. Unless, the doctor doesn't have the skill to perform a myomectomy. With regard to the ovarian cyst, every menstruating woman produces an ovarian cyst every month, it the normal function of the ovaries.

If you would like to receive in depth information about fibroids and ovarian cysts you can visit HERS website at http://www.hersfoundation.org. Click on "Contact", and in the comment section let us know that you need information about fibroids and ovarian cysts, and it will be promptly emailed to you. You can also arrange a telephone appointment to speak with a counselor, if you feel that would be helpful in determining options, and finding a gynecologist who is skilled at performing myomectomies.

April 6, 2010 - 7:53pm
(reply to Anonymous)

To Anon who just wrote - Do you know how sick it is to read your words? I wish I would have read such words before I was scared into having my Hyst. for fibroids. I have to stop now. I have to wipe off the water on my keyboard keys...

April 7, 2010 - 12:00am
EmpowHER Guest
Anonymous

My mother had a hysterectomy about 25 years ago and she thinks its the best thing she's ever done. However, all the problems that she experiences: urge incontinence, also urge incontinence with her bowls, she looks much older, she is a social recluse she does not realize that is a result of her hysterectomy. I was faced with a hysterectomy as I had placenta previa percreta. That is when the placeta grows thought the uterus into the bladder. My OB wanted to perform a hysterectomy because he was a afraid that I would hemorrhage to death after the cesarian. After seeing the hers video and reading the blog I was more afraid of the hysterectomy than dying! And I told him that too. So instead he gave me UAE to block off my arteries in case I did have a massive bleed. Now I know that isn't great but it is far better than a hysterectomy. However, my orgasms have definitely been affected. I am really curious to know what kind of orgasms those women used to havenq9 who say sex is better than ever after a hysterectomy. For me I used to have massive uterine contractions like earthquakes. Now I have smaller ones and sometimes clitoral ones which I compare to driving over a speed hump. My point is that women who say sex is the same probably never experienced fantastic orgasms in the first place!

April 6, 2010 - 12:57am
(reply to Anonymous)

To Anon who wrote April 5th:
Thank you for sharing. I am so sorry about your mother, and you brought up important points; i.e., the problems she realizes now have stemmed from her Hyst., and I can surely relate. I had a Hyst. the very end of 2003. I was once an extremely, social, vibrant female. I am a recluse now and ever since the Hyst.. I also have RSD, had it before the Hyst., and it is a nerve disease/syndrome. The GYN who scared me into having the Hyst. for two fibroids in my uterus was aware I had RSD. He should have considered every other alternative; especially, with me. People with RSD should avoid surgery whenever they can. He, as a doctor, should have known this. My main points are with you sharing are: I understand with what you say about your mother. I also agree with you with women saying their sexual feelings are the same if not better. I had fantastic orgasms and sexual drive before my Hyst., and this angers me; as my own doctor said my sexual drive would not change. Bologne! I am sorry, but the women who say all is fine must not have had, in my opinion, those fantastic uterine orgasms or would even notice a change. Well, I certainly did, and my husband sees this too. He is angry, and he has every right to be. He sat there and listened to this doctor say this to us prior to my surgery. I promoted making love with my husband before. I have no desire for making love now. This is HUGE, and I think doctors pass this off as a consideration of one of the negative outcomes by having a Hyst.. I have said it before, and will say it again - this would not happen to men. Every alternative would be recommended to save their 'sexual organs'. Why is this not the same standard for females. Think long and hard about this everyone. I will debate anyone who says differently. I can speak with experience now.

On a final note - too many women out there are afraid to speak up about this also. It is a 'personal' thing with some women. Some women - it has to do with their generation, and one just does not discuss such things. But, Anon - you can sense with your mother that her ill effects she now lives with were caused by her Hyst., but she cannot speak up about it, I think. She is a brave woman. I can sense that...
You sound like a daughter who truly cares about her. Give her a big hug from me, and tell her a comrade says 'Hang in There', and she is not alone, and her plight is shared by millions of women. These doctors must be stopped with getting away with this, and it should have been 'Yesterday'.

April 6, 2010 - 4:44pm
EmpowHER Guest
Anonymous

Braveheart226 well it sounds like you are doing well. Here are some of my symptoms I never related to the hysterectomy. Loss of sexual desire, and pleasure with intercourse, diminished frequency of intercourse, loss of orgasm, pain with intercourse, loss of energy and stamina, weight gain, irritability, loss of long and short term memory, pelvic pain, insomnia, anxiety, nervousness, muscle aches, bone and joint pain, back pain, stiffness pain in the butt, pain that runs down my legs, difficulty walking up or down the stairs, difficulty sitting because of the back and pelvic pain. Constipation, diarrhea, heart palpitations, urinary frequency, incontinence, So it sound like you are doing ok.

March 19, 2010 - 7:28pm
(reply to Anonymous)

Braveheart226 - How fortunate you are, but so true with what the recent Anon. posted here. One stating there are other alternatives to save a female's vital organs, and the last one posting who has had so many aftermath of physical problems 'Post.-Hyst'. I am among the misfortunate ones as she who has been so physically devastated after my Hyst.. The point being is this: Why should women be subjected to the chance of having this unnecessary surgery done when there are so many alternatives to save such a vital organ(s) and mutilation to our bodies? I deal with such awful aftermath of physical problems daily after my Hyst., and one problem also is my sexual drive. My husband can attest to the fact that we had it great before my Hyst., and you are so lucky yours has not diminished. But why take the chance on this, alone, when there is 'No Going Back'? The other factor is: there are millions of women as myself who have their lives changed so dramatically by this unnecessary surgery; it must be a matter of laws put into effect so any female does not wind up with such horrific physical problems like the last Anon. posted here, and I do not need to list mine; as already listed here. Would want their female daughter subjected to this? I should say not. So, what is the problem with eliminating the chance of this happening to any loved one, friend, and even just another female - period? It baffles my mind that any woman would be against legislative change to put into law that every female view the Hers Foundation video before making a decision to have a Hysterectomy. Remember - there is no going back. The probability of these lifelong physical changes are not worth risking - not with so many alternatives out there. As for me, with having two small fibroids; I could have even done nothing, but let 'Nature' take its course, and they eventually would have 'shriveled' up; so to speak. My GYN who mutilated me did not tell me this; along with providing me with effective alternatives. Again, if it was your daughter; wouldn't you want her to be as 'Informed' as possible? I have yet to hear anyone argue this point. If one does; one is either so one sided, a doctor hiding here, truly does not care, or does not have a daughter. Someone has to tell me when it is good to be 'Less Informed' than 'More Informed'. The Hers video MUST BE seen by all females before making a decision on this very 'Precious Part" of their bodies. Wake up everybody, and stop this insanity. Those of you who comment and your life is fine after your surgery, again - this is great. But, you are one of the minority and lucky, but we cannot depend on luck - truly.

On a final note - I would not be speaking up about this if it was not such a 'Huge' issue. Women who have been devastated by this do speak up and rightly so. We are trying to make sure this does not happen to any other female. Wouldn't you like someone as this to do just this; i.e., 'Speak Up'? Thank God we are. We may save one woman at a time, but better than none. I wish I would have had someone as myself to listen to before I had my Hyst.. Oh, how I wish...

March 19, 2010 - 8:42pm
EmpowHER Guest
Anonymous

Women should know that a fibroid can be removed by myomectomy and that an ovarian cyst can be removed by cystectomy. Most doctors don't make women aware of that because they are paid more by the number of organs they remove, not by the organs they save. Long term health consequences include increased risk for heart disease, dementia, lung cancer, osteoporosis and more.

March 19, 2010 - 7:00pm
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