I have right nephroptosis, first surgery in 2003 worked great, but kidney fell again in 08, surgery again, kidney fell again 6 months later, now the doctors dont know what to do. Have right flank pain 24/7 and am on fentanyl patch. There don't seem to be any good options and it is difficult to find a urologist who has actually dealt with this condition.
All user-generated information on this site is the opinion of its author only and is not a substitute for medical advice or treatment for any medical conditions. Members and guests are responsible for their own posts and the potential consequences of those posts detailed in our Terms of Service.
Add a Comment41 Comments
Kurn95,
I bet it is difficult to find a urologist who has dealt with it, because it's not even easy to find a lot of information on the web about it, is it?
For others who are reading, nephroptosis (or "floating kidney") is a condition in which the kidney actually prolapses, or falls, lower in the body than it is supposed to be.
Kurn, are you male or female? And how old are you? If you are female, have you had other surgeries, like a hysterectomy?
And can you tell me a little more about your procedures? How was the kidney's position fixed? And why does your doctor believe it failed, either the first time or this time? Is it due to muscles or ligaments that have gone weak?
Here is a JAMA (Journal of the American Medical Association) archives article that you may be interested in. Only the first couple of paragraphs are available without purchase, but you may be able to tell from reading those whether it would be helpful to you:
http://jama.ama-assn.org/cgi/content/summary/XLI/19/1132
And here's another registration-needed study, in the Southern Medical Journal:
http://journals.lww.com/smajournalonline/Citation/1912/06000/Further_Consideration_of_Prolapsed_Kidney.2.aspx
Let us know a little more in detail, Kurn, and we'll see what we can find out for you. In the meantime, maybe someone else who has had experience with this will see your question and share their knowledge.
December 15, 2009 - 9:09amThis Comment