Thanks for this Jody. I really appreciate how you emphasize the level of disability many patients have, and that you are one of the more fortunate patients in how much you are able to function. Also, that even so, you have to start with about 2 minutes of gentle anaerobic twice a week. And that you can't reach "normal" functioning. ANd that relapses, reductions in functioning, happen easily and frequently.
One thing I would add is that not all mainstream thinks that exercise programs are good for PWME. The Institute of Medicine in reviewing the literature saw that the research indicates that exertion can cause great physical harm to most body systems. The work of Stevens/Snell, Keller, Newton and more. So much so that they proposed renaming the disease Systemic Exertion Intolerance Disease.
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Thanks for this Jody. I really appreciate how you emphasize the level of disability many patients have, and that you are one of the more fortunate patients in how much you are able to function. Also, that even so, you have to start with about 2 minutes of gentle anaerobic twice a week. And that you can't reach "normal" functioning. ANd that relapses, reductions in functioning, happen easily and frequently.
One thing I would add is that not all mainstream thinks that exercise programs are good for PWME. The Institute of Medicine in reviewing the literature saw that the research indicates that exertion can cause great physical harm to most body systems. The work of Stevens/Snell, Keller, Newton and more. So much so that they proposed renaming the disease Systemic Exertion Intolerance Disease.
leelaplay
June 29, 2016 - 12:26pmThis Comment
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