Been on this same road to hell for over 6 years.
"The next specialist was a misogynistic, crotchety creature who scoffed at my Itchy File, my symptoms" OMG I think I am seeing this same specialist now. :(
I had a friend recently give me the advice that we should "stop looking for a cure and be satisfied with whatever small enjoyment we can obtain from life" NOPE sorry I am not going to settle for my current very poor quality of life. Doctors don't realize how PAINFUL and life altering these conditions can be. Look at her face, the first compared to now. The amt of swelling in the first may not look bad to the casual observer because she is thin BUT I know from experience that look....and the pain that goes with it. I went years without a good night's sleep due to pain and discomfort. This saga proves that there IS hope, and yes a small number of patients with money, good insurance, luck and persistence DO actually sometimes get answers and get better!!!
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Been on this same road to hell for over 6 years.
July 31, 2016 - 5:26pm"The next specialist was a misogynistic, crotchety creature who scoffed at my Itchy File, my symptoms" OMG I think I am seeing this same specialist now. :(
I had a friend recently give me the advice that we should "stop looking for a cure and be satisfied with whatever small enjoyment we can obtain from life" NOPE sorry I am not going to settle for my current very poor quality of life. Doctors don't realize how PAINFUL and life altering these conditions can be. Look at her face, the first compared to now. The amt of swelling in the first may not look bad to the casual observer because she is thin BUT I know from experience that look....and the pain that goes with it. I went years without a good night's sleep due to pain and discomfort. This saga proves that there IS hope, and yes a small number of patients with money, good insurance, luck and persistence DO actually sometimes get answers and get better!!!
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