It's amazing, isn't it, that there is no event in the U.S. except for any held by people of the ME/CFS community themselves. The silence is indeed deafening.
We have all managed to wear blue, but that's partly because we're all in jeans today.:) My son Jesse who is also sick is wearing blue plaid pyjama pants, a blue Tshirt and a blue striped hoodie. So he is a vision for ME/CFS awareness today.:)
I hope you can get your photo next year. Some years are harder than others. I hope the next one is better for you all.
Thank you for writing.:)