Yes, finally! You put into words the anger and frustration I've been feeling for years. I am sick and tired of running to doctor after doctor and being told - constantly and persistently - THERE. IS. NOTHING. THEY. CAN. DO. There is no reason, no justification for this!!! We are mad as hell. The Center for Diseases CLAIMS that HS is such a "rare" disease, there are not enough people afflicted to warrant serious funding. AKA PROFIT. Not true!! I think that's a lie. Look how many people have HS!!! Have we all been counted?? Just how many more do they need???? I think their numbers are false!! For God's sake, this diseases is a living hell. If the drug companies want profit, well shoot - we will pay whatever it takes to get rid of this!! We are sick and tired of cries falling on deaf ears. Sick of doctors shooing us out of their offices with prescriptions scribbled in haste for drugs that have been proven INEFFECTIVE!!! No cure, no long lasting remedy, just sit there and suffer is all they tell us. Where can we ban together and shout in UNISON to the medical community?? I need to know where we can be heard. Who can help us?? Where do we go from here???
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Yes, finally! You put into words the anger and frustration I've been feeling for years. I am sick and tired of running to doctor after doctor and being told - constantly and persistently - THERE. IS. NOTHING. THEY. CAN. DO. There is no reason, no justification for this!!! We are mad as hell. The Center for Diseases CLAIMS that HS is such a "rare" disease, there are not enough people afflicted to warrant serious funding. AKA PROFIT. Not true!! I think that's a lie. Look how many people have HS!!! Have we all been counted?? Just how many more do they need???? I think their numbers are false!! For God's sake, this diseases is a living hell. If the drug companies want profit, well shoot - we will pay whatever it takes to get rid of this!! We are sick and tired of cries falling on deaf ears. Sick of doctors shooing us out of their offices with prescriptions scribbled in haste for drugs that have been proven INEFFECTIVE!!! No cure, no long lasting remedy, just sit there and suffer is all they tell us. Where can we ban together and shout in UNISON to the medical community?? I need to know where we can be heard. Who can help us?? Where do we go from here???
June 6, 2012 - 11:07amThis Comment
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