My son has Duchenne muscular dystrophy and the diagnosis is absolutely devastating. Also difficult is the progressive nature of the disease--we worry about when he will lose certain abilities. I'm also concerned about his ability to make and sustain friendships as his disease progresses. I have gained a great deal of support from Parent Project Muscular Dystrophy, parentprojectmd.org. We hope and pray that some of the research advances will be fast-tracked by the FDA in time to help our six year old son.
Comment Reply
My son has Duchenne muscular dystrophy and the diagnosis is absolutely devastating. Also difficult is the progressive nature of the disease--we worry about when he will lose certain abilities. I'm also concerned about his ability to make and sustain friendships as his disease progresses. I have gained a great deal of support from Parent Project Muscular Dystrophy, parentprojectmd.org. We hope and pray that some of the research advances will be fast-tracked by the FDA in time to help our six year old son.
December 15, 2011 - 2:31pmThis Comment
Reply