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Anonymous

My son has Duchenne muscular dystrophy and the diagnosis is absolutely devastating. Also difficult is the progressive nature of the disease--we worry about when he will lose certain abilities. I'm also concerned about his ability to make and sustain friendships as his disease progresses. I have gained a great deal of support from Parent Project Muscular Dystrophy, parentprojectmd.org. We hope and pray that some of the research advances will be fast-tracked by the FDA in time to help our six year old son.

December 15, 2011 - 2:31pm

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