Thank you so much for responding. Unfortunately, my husband passed away from complications of his OTC deficiency in May of 2010. He remained in his coma for 3 1/2 months and never came out of it. We finally had to make the decision to let him go. I will say that the experience taught me a lot about the disease and the devastating effects it can have. My husband had some other factors that I believe made the difference in his lack of recovery. He had been diagnosed with prostate cancer a few months earlier and had received a Lupron shop and then was on Androgens to counteract the "flashes" caused by the Lupron. He also had sarcoidosis of the lungs that once they did an MRI about 3 weeks into the coma (he had a bolt in his head up until then to measure ICP), there was also signs of neuro-sarcoid. What we at least know now is that the disease exists within the family and now we can watch for future generations to show symptoms. I am so happy that you are doing well in managing your disease. I wish you the best.
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Thank you so much for responding. Unfortunately, my husband passed away from complications of his OTC deficiency in May of 2010. He remained in his coma for 3 1/2 months and never came out of it. We finally had to make the decision to let him go. I will say that the experience taught me a lot about the disease and the devastating effects it can have. My husband had some other factors that I believe made the difference in his lack of recovery. He had been diagnosed with prostate cancer a few months earlier and had received a Lupron shop and then was on Androgens to counteract the "flashes" caused by the Lupron. He also had sarcoidosis of the lungs that once they did an MRI about 3 weeks into the coma (he had a bolt in his head up until then to measure ICP), there was also signs of neuro-sarcoid. What we at least know now is that the disease exists within the family and now we can watch for future generations to show symptoms. I am so happy that you are doing well in managing your disease. I wish you the best.
January 3, 2012 - 11:05pmThis Comment
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