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I was 52 years old when I woke up and was having a really, really hard time breathing. I went to Urgent Care, who immediately sent me to the ER-thinking I was having a pulmonary embolism. I was in the hospital or 10 days. They did PFTs and CT scans, respiratory treatments and PT to increase my physical activity. I was completely exhausted from just trying to breath, it was all I could do to get up to go to the bathroom. They had all sorts of specialists come in--pulmonologists, infectious disease doctors, etc. They never mentioned Hamman Rich Syndrome at all. They never talked about expected outcomes, death rates, etc. They were talking about a vent at one time and believe me-I would have welcomed it because it was so hard to breath!!! Anyway, after 10 days hey released me to go home. I first saw this diagnosis on my health record last week. I do not know about what may have contributed to this, but I do have a hx of sarcoidosis, alopecia, Sjrodens syndrome, and almost yearly pneumonia/bronchitis. What is the research saying about reoccurrence rates???

January 5, 2020 - 11:17pm


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