My dad was diagnosed with Hammond-Rich Syndrome in 1970 and given 6 months, 2 years max. His doctor put him on duirel and prednisone. He continued on those meds for about 20 years. The prednisone enlarged his heart and he died of a heart attack in 1998. Although meds can help please be careful of the long term side effects. From 1990 until his death my dad had many bouts of pneumonia, 2 to 3 times a year. He lived a full life, enjoyed his grandchildren and worked for 20 years with the disease. Do not feel this is a death sentence or your life is over.