Hi everyone!
Yes, there about half of the comments missing.
Pat, is there anyway to get them back or are they "lost"?
A little worried about this cause a lot of important iformation is missing...
I have followed the comments here ever since I wrote as number two in this thread.
No improvement yet in my case,
I am amazed over how many people have responded, ,since I first started seeking information about sticky skin, It was almost inpossible to find anyone with this, or any information a couple of years ago.
This is hopefull.
I have been very sick and not had the energy to really put into words here what I am going through,
One thought that have been on my mind for quite a while now is that I It would be avery good thing to start up a support group with a website, where we can discuss futher and maybe make lists of symptomes and categorize them in a way that makes is easier to draw conclusions. As someone mensioned there seem to be a little variation about how the symtomes appear, I would belong to the group of people who has sticky skin only when moist,, rubbery skin when wet, and nothing when completely dry. The episodes start up after coming in contact with chemichals ,in my case, for example printed paper, plastic cast and so on, but then is persistent for a long time even if a dont use any of these products during that time. I also have what someone here called internal problems, Some sort of allergy seem to be a resonable conclusion in some cases, and some of us have other (related?) issues, I´ve been diagnosed with ME.
I feel I am a little different in the matter of how this first happened to me since I KNOW it was due to a chemical exposure the first time it happened, (please read my firt post) and my family was affected as well, and the symtomes of sticky skin actually was contaigues for quite a while. All of the discussions here about allergy, mold, fungal infections, chemichals are interesting, I have a lot of thoughts but It would take ages to write them all down, and i´m simply dont have the enrgy, unfortunately.
Is there anyone here who has time and energy (and ability) to start up a supportgroup/website and some smart system to categorise our symtomes of sticky skin and different health issues connected to it, I think it woulb be fantastic!
And Pat, please see what can be done about the several pages of missing comments? can we get them back? Really sad about them missing.
Take care everyone!
Comment Reply
Hi everyone!
November 4, 2010 - 6:38pmYes, there about half of the comments missing.
Pat, is there anyway to get them back or are they "lost"?
A little worried about this cause a lot of important iformation is missing...
I have followed the comments here ever since I wrote as number two in this thread.
No improvement yet in my case,
I am amazed over how many people have responded, ,since I first started seeking information about sticky skin, It was almost inpossible to find anyone with this, or any information a couple of years ago.
This is hopefull.
I have been very sick and not had the energy to really put into words here what I am going through,
One thought that have been on my mind for quite a while now is that I It would be avery good thing to start up a support group with a website, where we can discuss futher and maybe make lists of symptomes and categorize them in a way that makes is easier to draw conclusions. As someone mensioned there seem to be a little variation about how the symtomes appear, I would belong to the group of people who has sticky skin only when moist,, rubbery skin when wet, and nothing when completely dry. The episodes start up after coming in contact with chemichals ,in my case, for example printed paper, plastic cast and so on, but then is persistent for a long time even if a dont use any of these products during that time. I also have what someone here called internal problems, Some sort of allergy seem to be a resonable conclusion in some cases, and some of us have other (related?) issues, I´ve been diagnosed with ME.
I feel I am a little different in the matter of how this first happened to me since I KNOW it was due to a chemical exposure the first time it happened, (please read my firt post) and my family was affected as well, and the symtomes of sticky skin actually was contaigues for quite a while. All of the discussions here about allergy, mold, fungal infections, chemichals are interesting, I have a lot of thoughts but It would take ages to write them all down, and i´m simply dont have the enrgy, unfortunately.
Is there anyone here who has time and energy (and ability) to start up a supportgroup/website and some smart system to categorise our symtomes of sticky skin and different health issues connected to it, I think it woulb be fantastic!
And Pat, please see what can be done about the several pages of missing comments? can we get them back? Really sad about them missing.
Take care everyone!
This Comment
Reply