Thaks for a couple of interesting posts. Edward, I like your theories very much. I think you are rigth about the trigger factor If we dont start over completely as you point out it can be nearly impossible to find out.... as you say you were lucky to find your trigger....I feel Im on to something all the time, but yeat to nail the trigger down, cause it might be several chemichal triggers from plastics, glue, rubberadditves, foodadditves, maybbe mold too.
Im thinking that since my first experience with sticky skin was definetely due to a chemichal and it and or the sticky skin was contaigious to other people, maybee there are some substances that would cause almost everyone to react. Other stuff might affect only me but not my partner and so on.
Since december when I got a really bad flare that lasted for a couple of months, I have watched the stckyness come and go a couple times. First i t dissappeared and I got a flare up for two days during my period. dissappeared...then got the symptome back on one hand for a couple of days, that time I think it was because I had held a telephone ( plastic chemicals, again?) in that hand, it seemd to be more of a nasty flare up than that during my period... more like really waxy and sticky. sticker sticky if you know what I mean,and then again had a flare up for a day or two during my period. That stickyness is a little bit more slimy/sugary stickiness, doesnt bug me as much.
The first flare up that lasted longer for a couple of months think the trigger was some sort of chemichal, from getting new products home from IKEA. Plastic componenets and additives is the hottest lead. But i also seem more receptible during my period leading me to think that the status of and hormone balance of the body is involved in this reaction in some way. Maybee a person with a good balaced hormone system and immunesystem doesnt react to the triggers... Maybee thats why I get so many flareups these last years, since Ive gotten worse in my ME ( myalgic ecephalemyelit) condition.
Maybee one way off course is to avoid the triggers, but if its impossible, maybee we can help the body to not react by balancing up hormones, and boost the immunesystem?? May be there are key hormone levels to look out for, as estrogen, but more so cortisole?I All of us get higher in cortisole during stress.....However, I did not have any episodes at all for a couple of years when I worked really hard with my diet and different supplements and antioxidants, qi gong and so on.... Unfortunatlely for me I have a cronic disease that makes those efforts only help to a certain level, as i t seems, and now I when Im really sick I cant keep the sticky skin thing at bay at all.... immune system and hormones maybe involved in the sticky skin reaction, and we all have hormones so why should only women be effected. We have the old report of the sticky skin syndrome ( aquired cutaneous adherance that was caused from people beeing given both cortisone and ketoconazole if you remember the earlier posts about that. So in one way i think Sticky skin syndrome is external trigger caused, but for those of us it happens to alot, would it happen if there wasnt a systemic predisposition too, high or low levels of something important in the glands in the skin?
To the person that reacted to fiberglass resins and stuff, What are oxy pads?? Since I too seem to be triggerd by different chemichlas that may be really tricky to dissolve or rinse of , ( some chemichals are really scary when you think about it, take isocyanes for an instance good luck in avoiding those if you are sensitve...they are one of my suspects and availible in shoes mattrasses alaquer and stuff) Can you explain and maybe the brand name you use on oxy pads?? Im always tring to find info and learn more about solvents, and prefearbly unharmful or natural substanses. Sometimes Im able to get rid of the sticky skin reaction by using a small amount of naphta but since that is toxic i cant used it other than as a last way out and only on a very small area, and sometimes it helps sometimes i dont, depending on the chemichal trigger. Oxy pads seemed like something to check out.
Take care all!
/Kacha
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Hi! Kacha here...
Thaks for a couple of interesting posts. Edward, I like your theories very much. I think you are rigth about the trigger factor If we dont start over completely as you point out it can be nearly impossible to find out.... as you say you were lucky to find your trigger....I feel Im on to something all the time, but yeat to nail the trigger down, cause it might be several chemichal triggers from plastics, glue, rubberadditves, foodadditves, maybbe mold too.
Im thinking that since my first experience with sticky skin was definetely due to a chemichal and it and or the sticky skin was contaigious to other people, maybee there are some substances that would cause almost everyone to react. Other stuff might affect only me but not my partner and so on.
Since december when I got a really bad flare that lasted for a couple of months, I have watched the stckyness come and go a couple times. First i t dissappeared and I got a flare up for two days during my period. dissappeared...then got the symptome back on one hand for a couple of days, that time I think it was because I had held a telephone ( plastic chemicals, again?) in that hand, it seemd to be more of a nasty flare up than that during my period... more like really waxy and sticky. sticker sticky if you know what I mean,and then again had a flare up for a day or two during my period. That stickyness is a little bit more slimy/sugary stickiness, doesnt bug me as much.
The first flare up that lasted longer for a couple of months think the trigger was some sort of chemichal, from getting new products home from IKEA. Plastic componenets and additives is the hottest lead. But i also seem more receptible during my period leading me to think that the status of and hormone balance of the body is involved in this reaction in some way. Maybee a person with a good balaced hormone system and immunesystem doesnt react to the triggers... Maybee thats why I get so many flareups these last years, since Ive gotten worse in my ME ( myalgic ecephalemyelit) condition.
Maybee one way off course is to avoid the triggers, but if its impossible, maybee we can help the body to not react by balancing up hormones, and boost the immunesystem?? May be there are key hormone levels to look out for, as estrogen, but more so cortisole?I All of us get higher in cortisole during stress.....However, I did not have any episodes at all for a couple of years when I worked really hard with my diet and different supplements and antioxidants, qi gong and so on.... Unfortunatlely for me I have a cronic disease that makes those efforts only help to a certain level, as i t seems, and now I when Im really sick I cant keep the sticky skin thing at bay at all.... immune system and hormones maybe involved in the sticky skin reaction, and we all have hormones so why should only women be effected. We have the old report of the sticky skin syndrome ( aquired cutaneous adherance that was caused from people beeing given both cortisone and ketoconazole if you remember the earlier posts about that. So in one way i think Sticky skin syndrome is external trigger caused, but for those of us it happens to alot, would it happen if there wasnt a systemic predisposition too, high or low levels of something important in the glands in the skin?
To the person that reacted to fiberglass resins and stuff, What are oxy pads?? Since I too seem to be triggerd by different chemichlas that may be really tricky to dissolve or rinse of , ( some chemichals are really scary when you think about it, take isocyanes for an instance good luck in avoiding those if you are sensitve...they are one of my suspects and availible in shoes mattrasses alaquer and stuff) Can you explain and maybe the brand name you use on oxy pads?? Im always tring to find info and learn more about solvents, and prefearbly unharmful or natural substanses. Sometimes Im able to get rid of the sticky skin reaction by using a small amount of naphta but since that is toxic i cant used it other than as a last way out and only on a very small area, and sometimes it helps sometimes i dont, depending on the chemichal trigger. Oxy pads seemed like something to check out.
April 15, 2012 - 8:40amTake care all!
/Kacha
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