so sorry to hear all that you have gone though. My son had a posterior fossa arachnoid cyst. I can tell you that the most important thing is finding the right DR. Look in your area for a nero surg that has either had experiance wth cyst or has had training in the mid west the peds dr out there seem to have atleast seen these types of things. My son had many of the same symptoms as your daughter (but not the seizures). My son had his cyst surg june 16 and is doing great his dr says that the best age to do surg for these is when the children are teens (they still recover well but can explain what is going on better to the drs) If you are in FL my sons dr is (name removed by EmpowHER Moderator.) he is with Arnold Palmer Childerns Hosp. Hope you find a dr that is good in your area. Keeps us all Updated. And remember that a mother knows their child better than anyone keep going till you find a dr that listens.
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so sorry to hear all that you have gone though. My son had a posterior fossa arachnoid cyst. I can tell you that the most important thing is finding the right DR. Look in your area for a nero surg that has either had experiance wth cyst or has had training in the mid west the peds dr out there seem to have atleast seen these types of things. My son had many of the same symptoms as your daughter (but not the seizures). My son had his cyst surg june 16 and is doing great his dr says that the best age to do surg for these is when the children are teens (they still recover well but can explain what is going on better to the drs) If you are in FL my sons dr is (name removed by EmpowHER Moderator.) he is with Arnold Palmer Childerns Hosp. Hope you find a dr that is good in your area. Keeps us all Updated. And remember that a mother knows their child better than anyone keep going till you find a dr that listens.
August 19, 2010 - 7:16pmThis Comment
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