I was diagnosed with Endo through a laparoscopy that went terribly wrong. The surgeon nicked my iliac artery, and I bled out. A simple out-patient procedure turned into a full laparotomy. After a long,painful recovery, I was on monthly Lupron injections with the norethindrone add back therapy for 4 years without any breaks in between cycles. The side effects were terrible: night sweats, heavy weight gain, confusion/lack of memory/fuzziness of my brain, insomnia, joint pain especially on the sides of my hips, migraines, vaginal dryness, loss of sex drive, and severe fatigue BUT my endo pain was gone. My OBGYN said the drug was working and that was the ultimate goal. My OBGYN explained that Lupron had its side effects, and within a few months after stopping they would be gone. After much research and reading horror stories of this prostate cancer drug, i decided to stop the injections. My OB disagreed with my decision, but supported it. I have been off the injections for 2 years now, but I still take norethindrone daily. The side effects are still present and my endo pain is back. I am only 29 years old, and I want a full hysterectomy. I have dangerous amounts of scar tissue from previous surgeries as a child: repair of gastroschisis as a newborn, removal of my left kidney, and the full laparotomy. A doctor referred to my stomach as a "road map." I cannot have a bowel movement or sneeze without it feeling like someone is pulling on my scars from the inside. I understand that a full hysterectomy cannot fix everything because the endo has attached to my organs and with large amounts of scar tissue present, but I refuse to get back on the Lupron injections. I do not recommend this drug as a form of treatment to anyone. It will take away your endo pain after a few months, but the side effects are severe and are NOT irreversible. This drug is used for men with prostate cancer. It is small amount of chemotherapy injections monthly. I am 29 and I feel like I'm 69. It is hard to get out of bed because of the joint pains. I feel crazy at times trying to explain how I feel to my friends, family, and doctors. I suggest you heavily research all of your possible treatment options including alternative medicine before opting to use this drug.
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I was diagnosed with Endo through a laparoscopy that went terribly wrong. The surgeon nicked my iliac artery, and I bled out. A simple out-patient procedure turned into a full laparotomy. After a long,painful recovery, I was on monthly Lupron injections with the norethindrone add back therapy for 4 years without any breaks in between cycles. The side effects were terrible: night sweats, heavy weight gain, confusion/lack of memory/fuzziness of my brain, insomnia, joint pain especially on the sides of my hips, migraines, vaginal dryness, loss of sex drive, and severe fatigue BUT my endo pain was gone. My OBGYN said the drug was working and that was the ultimate goal. My OBGYN explained that Lupron had its side effects, and within a few months after stopping they would be gone. After much research and reading horror stories of this prostate cancer drug, i decided to stop the injections. My OB disagreed with my decision, but supported it. I have been off the injections for 2 years now, but I still take norethindrone daily. The side effects are still present and my endo pain is back. I am only 29 years old, and I want a full hysterectomy. I have dangerous amounts of scar tissue from previous surgeries as a child: repair of gastroschisis as a newborn, removal of my left kidney, and the full laparotomy. A doctor referred to my stomach as a "road map." I cannot have a bowel movement or sneeze without it feeling like someone is pulling on my scars from the inside. I understand that a full hysterectomy cannot fix everything because the endo has attached to my organs and with large amounts of scar tissue present, but I refuse to get back on the Lupron injections. I do not recommend this drug as a form of treatment to anyone. It will take away your endo pain after a few months, but the side effects are severe and are NOT irreversible. This drug is used for men with prostate cancer. It is small amount of chemotherapy injections monthly. I am 29 and I feel like I'm 69. It is hard to get out of bed because of the joint pains. I feel crazy at times trying to explain how I feel to my friends, family, and doctors. I suggest you heavily research all of your possible treatment options including alternative medicine before opting to use this drug.
April 26, 2017 - 9:15amThis Comment
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