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i am a 49 year old man with both a wife and 17 year old daughter who live with MS. My daughter thank god is in a 5 year remission at this time and is healthy but my wife on the other hand has been progressively getting worse and is now wheelchair bound and relies on me for just about evrything. It has been hard on all of us and when i really think about it ...i am the lucky one. My wife lives with terrible symptoms that no medication can surpress but she struggles on like a real trouper. My daughter on the other hand has to watch and see what her fate may be in years to comeor maybe tomorow she could wake up blind or paralized on one side who knows...... She seems resilient ...i hope so. life sucks...Then there is me...i cook ,clean,shop,caregive,worry our lives, our money, how will we cope. I seem to be able to pick myself up when i need to but i do have my days when i wish i was somewhere else. But i have told myself i cant leave...my wife needs me and what kind of father would i be to my daughter , what if she gets sick, would she think i would leave her. I and my wife have discussed this sometimes and we think that maybe we suffer so that she stays well. Its a terrible tradeoff (catch 22) but that is the way it is

May 18, 2011 - 10:36pm

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