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Veronica's picture

Juvenile Dermatomyositis (JDMS) recently diagnosed & have many questions

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My good friend's 4-year old daughter was just diagnosed with juvenile dermatomyositis on Wednesday, and we are scared and shocked! What does this mean for the long-term health of her daughter? My friend also has a 12 month old daughter; what is the likelihood that she would develop this disease, too? Any way to prevent it?

I was wondering if you all had access to a pediatric rheumatologist, as my friend has some questions she would like to ask (for a 2nd opinion, they really like their current doctor).

Here are some of our initial questions:


     
     
meme5567's picture

I need a true friend. Some one who gets me and understands.

35
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Hello I'm Melissa, I'm 41 yrs old I have two children and a grand daugther. I have fibromyalgia,thyroid and so much more.
I'm going to start therapy soon. It's scary to tell someone things you never say out and in the open. In your head you can say anything and everything. And no ones can say your nuts or why do you think like that. Or people don't see you that way or think that you’re weak. That is the way I feel.