I just read your profile. Wow. You're one amazing woman.
I'm also a single mom of three and was a SAHM for about 12 years. I can really relate to your NICU experience. I had twin boys who were born 3 months premature. The smaller of the two was only about a pound and he suffered from amniotic banding syndrome which caused a cleft palate that was irrepairable. He died during his second day. His twin brother stayed in NICU for two months, during which time he suffered a severe brain hemorrhage. But somehow he made it, overcame many developmental challenges, and is now an amazing 13-yr-old. He has a high functioning form of autism, Asperger's Syndrome, as well as Tourette's Syndrome, but he's done remarkably well. There was a time when I was told he would never talk in complete sentences and that he'd never be able to attend a "typical" school. The experts were wrong on both counts. (Sometimes I wish he'd stop talking so much.) :)
I learned early on to never give up and keep pressing for more opinions and more and more therapy.
Anyway, I'm really glad you've joined our EmpowHered community! I'll go check out your web site.
Warmly,
Kristin
Kristin Davis
by Kristin Davis Posted: Mon., June 30, 2008, 09:33 pm
Welcome to EmpowHer.com. You have great strength and spirit and as Kristin stated it's to advocate for the health of your child as well as your own health.
You said you were looking for pointers. What type of pointers were you looking for?
I just read your profile, and you seem like you've been through a lot...but you also sound very energetic and happy! (I got this all from just 4 sentences...ha ha!) ;-)
I can also relate to your NICU experience: my son (also named Austin), was born 2 months early, and was in the NICU for 2 weeks. He miraculously was born with good lung function, but was unable to regulate his body temperature, weighed only 4 pounds, had severe petichia, and needed to be fed off/on through feeding tube. We had him home for a month, and had to go back to the NICU, as we found out he was born with bilateral inguinal hernias that needed to be surgically repaired. My son also went through a scare of a seizure, although from a one-time illness brought on by a high-fever; I can not imagine watching my son go through a condition that brings on multiple seizures...how do you manage this? The only preemie-consequence that we are dealing with now, (he is 20 months old), is low weight issues, but nothing too concerning (although, concerning enough).
I hope to hear more about your stories with your three sons, how you handled 2 of them being in the NICU...and your pathway/journey to now, with two of the three boys living with chronic conditions, one in his "terrible two's" (I only have 4 more months of sanity!). I am unfamiliar with most of the conditions you mentioned, and would be interested to hear more.
Plus...you mentioned that you are currently going to college. What is your major and when do you graduate? How are you juggling it all...all of us moms and parents on this site would love to know!
Welcome, Tarrin!
Hi there! I'm glad you joined the site. It's awesome. I've had a great experience here since I've joined.
I'll gladly add you to my friends list!
Posted: Mon., June 30, 2008, 09:17 pm
So glad you're here
Hi, Tarrin!
I just read your profile. Wow. You're one amazing woman.
I'm also a single mom of three and was a SAHM for about 12 years. I can really relate to your NICU experience. I had twin boys who were born 3 months premature. The smaller of the two was only about a pound and he suffered from amniotic banding syndrome which caused a cleft palate that was irrepairable. He died during his second day. His twin brother stayed in NICU for two months, during which time he suffered a severe brain hemorrhage. But somehow he made it, overcame many developmental challenges, and is now an amazing 13-yr-old. He has a high functioning form of autism, Asperger's Syndrome, as well as Tourette's Syndrome, but he's done remarkably well. There was a time when I was told he would never talk in complete sentences and that he'd never be able to attend a "typical" school. The experts were wrong on both counts. (Sometimes I wish he'd stop talking so much.) :)
I learned early on to never give up and keep pressing for more opinions and more and more therapy.
Anyway, I'm really glad you've joined our EmpowHered community! I'll go check out your web site.
Warmly,
Kristin
Kristin Davis
Posted: Mon., June 30, 2008, 09:33 pm
Welcome!
Welcome to EmpowHer.com. You have great strength and spirit and as Kristin stated it's to advocate for the health of your child as well as your own health.
You said you were looking for pointers. What type of pointers were you looking for?
You may also want to check out our parenting and maternity board at
http://www.empowher.com/community/forum/...
We're happy to have you here.
Posted: Tue., July 1, 2008, 08:00 am
Tarrin, Welcome!
I just read your profile, and you seem like you've been through a lot...but you also sound very energetic and happy! (I got this all from just 4 sentences...ha ha!) ;-)
I can also relate to your NICU experience: my son (also named Austin), was born 2 months early, and was in the NICU for 2 weeks. He miraculously was born with good lung function, but was unable to regulate his body temperature, weighed only 4 pounds, had severe petichia, and needed to be fed off/on through feeding tube. We had him home for a month, and had to go back to the NICU, as we found out he was born with bilateral inguinal hernias that needed to be surgically repaired. My son also went through a scare of a seizure, although from a one-time illness brought on by a high-fever; I can not imagine watching my son go through a condition that brings on multiple seizures...how do you manage this? The only preemie-consequence that we are dealing with now, (he is 20 months old), is low weight issues, but nothing too concerning (although, concerning enough).
I hope to hear more about your stories with your three sons, how you handled 2 of them being in the NICU...and your pathway/journey to now, with two of the three boys living with chronic conditions, one in his "terrible two's" (I only have 4 more months of sanity!). I am unfamiliar with most of the conditions you mentioned, and would be interested to hear more.
Plus...you mentioned that you are currently going to college. What is your major and when do you graduate? How are you juggling it all...all of us moms and parents on this site would love to know!
Take care..hope to hear from you again soon!
Posted: Tue., July 1, 2008, 02:26 pm
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