Hi everyone; I want to introduce myself to you. I have been a sufferer of Fibro for 5 years now and with summer approaching, I always get worse. I would like to hear from you folks as to what you might do to help the suffering.
Sandy, while waiting to hear from other women, you may want to check out a few of these resources:
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National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Information Clearinghouse
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
Toll Free: 877-22-NIAMS (226-4267)
TTY: 301–565–2966
Fax: 301-718-6366
Email: NIAMSinfo@mail.nih.gov
Website: http://www.niams.nih.gov
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National Center for Complementary and Alternative Medicine
National Institutes of Health
6401 Security Boulevard
Baltimore, MD 21235
Toll Free: 800-772-1213
TTY: 800-325-0778
Website: http://www.ssa.gov/disability
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American College of Rheumatology (ACR)
1800 Century Place, Suite 250
Atlanta, GA 30345-4300
Phone: 404-633-3777
Fax: 404-633-1870
Website: http://www.rheumatology.org
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Advocates for Fibromyalgia Funding, Treatment, Education, and Research
P.O. Box 31750
Tucson, AZ 85751-1750
Toll Free: 800-853-2929
Website: http://www.fmnetnews.com
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National Fibromyalgia Association
2200 N. Glassell Street, Suite A
Orange, CA 92865
Phone: 714-921-0150
Email: nfa@fmaware.org
Website: http://www.fmaware.org
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National Fibromyalgia Partnership, Inc.
Fibro and summertime
Sandy, while waiting to hear from other women, you may want to check out a few of these resources:
#
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Information Clearinghouse
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
Toll Free: 877-22-NIAMS (226-4267)
TTY: 301–565–2966
Fax: 301-718-6366
Email: NIAMSinfo@mail.nih.gov
Website: http://www.niams.nih.gov
#
National Center for Complementary and Alternative Medicine
National Institutes of Health
P.O. Box 7923
Gaithersburg, MD 20898
Phone: 301-519-3153
Toll Free: 888-644-6226
TTY: 866-464-3615
Fax: 866-464-3616
Email: info@nccam.nih.gov
Website: http://nccam.nih.gov
#
Social Security Administration
6401 Security Boulevard
Baltimore, MD 21235
Toll Free: 800-772-1213
TTY: 800-325-0778
Website: http://www.ssa.gov/disability
#
American College of Rheumatology (ACR)
1800 Century Place, Suite 250
Atlanta, GA 30345-4300
Phone: 404-633-3777
Fax: 404-633-1870
Website: http://www.rheumatology.org
#
Advocates for Fibromyalgia Funding, Treatment, Education, and Research
P.O. Box 768
Libertyville, IL 60048-0766
Phone: 847-362-7807
Fax: 847-680-3922
Email: info@affter.org
Website: http://www.affter.org
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Fibromyalgia Network
P.O. Box 31750
Tucson, AZ 85751-1750
Toll Free: 800-853-2929
Website: http://www.fmnetnews.com
#
National Fibromyalgia Association
2200 N. Glassell Street, Suite A
Orange, CA 92865
Phone: 714-921-0150
Email: nfa@fmaware.org
Website: http://www.fmaware.org
#
National Fibromyalgia Partnership, Inc.
P.O. Box 160
Linden, VA 22642–0160
Toll Free: 866-725-4404
Fax: 866-666-2727
Email: mail@fmpartnership.org
Website: http://www.fmpartnership.org
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Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
Phone: 404-872-7100
Toll Free: 800-283-7800
Website: http://www.arthritis.org
Also, could you speak a little bit about the difference in your symptoms in your Fibro as the weather heats up?
Posted: Tue., May 20, 2008, 07:58 am
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