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katydaqueen's picture

Part 3: Redefining Myself

by katydaqueen
Posted: Sun., March 23, 2008, 03:59 pm
51
vote
     
Topics: Adrenal Insuffiency, Androgen Excess, Congenital Adrenal Hyperplasia, Dexamethasone, Treatment
     
and the final re-post from my blog about being diagnosed with Congenital Adrenal Hyperplasia: So now I have a diagnosis, and have found out what it is. But what does it mean for me personally? This has been a large mental adjustment for me. There are several factors involved with this adjustment, so please bear with me as I try to put complex emotions down in writing.

     
     
     
     
katydaqueen's picture

The Mechanics of an Adrenal Disorder

by katydaqueen
Posted: Mon., March 17, 2008, 10:39 pm
53
vote
     
Topics: Adrenal Insuffiency, Androgen Excess, Congenital Adrenal Hyperplasia, Definition, Steriod Dependent
     
Once again, another re-post. It does get a bit technical, but still interesting: So, when I left off, I had just figured out that I had an rare genetic disease. CAH is an autosomal recessive disorder. In layman's terms, both men and women can have it, and both of my parents had to have the gene that causes it. Medically, it is fairly simple to understand. My body does not manufacture enough of the enzymes needed in the hormone conversion process. First some basic biology:

     
     
     
     
katydaqueen's picture

Dealing with a new diagnosis

by katydaqueen
Posted: Sun., March 16, 2008, 09:42 pm
36
vote
     
Topics: Adrenal Insuffiency, Adrenal insufiency, Androgen Excess, Congenital Adrenal Hyperplasia, Congenital Adrenal Hyperplasia, Dexamethasone, Diagnosis, PCOS, PCOS, Steroid Dependence
     
I am fairly sick right now, so I thought I would add a series of posts that I originally published on my personal blog. The posts were entitled "Redefining Myself" because that has had a lot to do with this journey. So far, I have had to deal with the emergency room twice with this disease/disorder and found that since it is a rare disease, I had to do a lot of advocacy and education. Luckily, CARES, which is the support organization for this sent me an emergency card that details my special needs. It has been 5 weeks since my diagnosis.
     
     
     
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