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by alysiak Posted: Wed., April 23, 2008, 05:03 pm
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With lupus, you have good days, and not-so-good days. The good days are precious, times when you feel energetic and pain free. The not-so-good days are when you just don't feel like moving, or can't.
While my current relapse isn't as overwhelming as past stretches have been, I'm just not as energized as I should be. My eyes are suffering. It's hard to breathe while on even an easy run. Some days, lately more of them, I simply cannot move off the sofa.
It occurred to me the other day that my kids have often found me asleep on the sofa. I've been feeling very guilty about it. But, I know it's not laziness, it's the lupus that causes this chronic exhaustion.
How do you handle your not-so-great days when life around you is so busy?
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Wonder Women
Posted: Thu., April 24, 2008, 11:55 am
Inspiring lupus patient
I was inspired by a story I read some years ago about a 30-something lupus patient who decided to train for a half marathon, and she finished in a little over 3 hours, a very respectable time. She suffered from lupus-related arthritis, but didn't want it to control her life. Too many people give in to their condition.
On the other hand, a young woman I know can barely make it through a day because of all her complications. It's such an unpredictable illness.
Your friend is lucky to have you as a friend.
Posted: Thu., April 24, 2008, 07:12 pm
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