I have had excruciating provoked pain with intercourse from the first time (on my wedding night). I have only been able to have sex with pain. We therefore no longer have intercourse. I just want some hope that there is healing for this condition. I don't know the cause, maybe an injury. I can touch the inner vestibule and feel the pain. I am trying a Gabapentin compound (only for a few days) but it hasn't helped yet. I'm just feeling discouraged. I've had this for 7 years and I just want to have a normal asexual relationship with my husband. If you know of any successful treatments, please share.
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Hello from Australia,
February 25, 2016 - 4:48amI have found relief using topical amitriptyline (Endep). I have to apply it daily and after about 5 days, the area is relatively pain free. Unfortunately however, if I discontinue, the pain returns after a couple of days. But the relief is still still welcome!
It was prescribed by a gyno specialist as part of a trial. That was about 5 yrs ago, so I'm not sure where the research has progressed to since.
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First off, I am so sorry that you are going through this. I have been there and it is absolutely the worst. Second, as of about 2 months ago I am pain-free! I suffered with Provoked Vestibulodynia (formally known as Vular Vestibulodynia Syndrome) for four years until I switched all my hair and body products to chemical free options and within a few weeks I could have pain-free sex for the first time in my marriage. It has been absolutely life changing. Like you, I discovered my pain on my wedding night. Awful. Now we have pain free sex! Here is a link to the post I read that helped me discover what was wrong:
http://www.experienceproject.com/stories/Have-Vulvar-Vestibulitis-Syndrome/1324024
I also found this one to be helpful:
http://pvdhelp.blogspot.com/2015/03/my-provoked-vestibulodynia-subsided.html?m=1
Don't give up hope! This might work for you too!
March 26, 2015 - 3:52pmThis Comment
Hello out there. I have this too. It is not from birth control pills. I have never been on them. I had heavy yeast treatments in the past, but that's a whole other story. I have lichen schlerosis, early stages, and most gynos say they could not even tell I have it. But what I have now that has been coming on slowly is the painful vestibuldynia, I can't remember whether its unprovoked or provoked. I have asked my doctors how I could get this, I've never had pain before. I'm 53. Probably started when I was 49...very slowly noticed... I don't really feel it unless having sex. I have tried everything....Pelvic PT...did nothing. topical gabapentin, did nothing. Nortatriptiline (my derm said it's very good for nerve issues so I thought I'd try it) Made me feel horrible, exhausted and constapated. STopped after a week. The only thing that I can do is lidocaine, before sex. Sure takes away the spontinaity though, and you have to plan it all out. wait, at least 15 minutes.... I hate it. A new gyno told me to put lidocaine on the area nightly. She said it would calm the nerves down. I didn't like that suggestion. Lidocaine just is temporary. Next we will try gabapentin. or another RX. I'm not a fan of going on medication. If it's going to give me daily side effects, it's not worth it. Anyway, I was seeing a wonderful specialist in Boston, if anyone is interested. Dr. Rasmussen. She is a specialist in vulvar pain. She helped me a lot but I can not commute there becasue it's very far. I am seeing a more local doctor. I live in CT. Anyway, the pain continues, and I think it's getting worse. IT's really put a damper on my sex life. I hope it's not spreading... ugggg,
June 8, 2014 - 5:30amJen
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I've been dealing with primary provoked vestibulodynia for years. I have yet to have found a treatment that works. I've been documenting my attempts of different treatments on my blog (http://apaininmypelvis.blogspot.ca/). Feel free to come read and share your experiences! I post useful links and articles on vulvodynia and critically analyze all forms of treatments from vestibulectomy's to lidocaine ointment to Botox.
November 22, 2013 - 1:25pmThis Comment
Hi thanks Rosa. Most of those suggestions are for vulvadynia which thankfully I don't have (its normally constant and mine is provoked). I am in physio but it isn't helping with the vestibule. I will be getting injections next. I just wanted to know of the are any other women with provoked pain and if anything besides surgery had worked.
March 31, 2013 - 10:04pmThis Comment
Hi Anon,
Here are some ways to possibly treat Vulvodynia:
Avoid Potential Irritants
It may help to avoid things that could be irritating the vulva. These might include certain soaps, medications, or douches. Here are a few tips:
Help Ease Pressure
Certain activities put pressure on the vulva.
Relieve Pain
These steps may help relieve vulvar pain:
Medications
Therapies
Surgery
If you have a type of vulvodynia called vulvar vestibulitis syndrome, your doctor may suggest surgery to remove painful tissue, especially if other options have not brought relief.
Please speak to your doctor about Medications and Surgery in your particular situation.
Best,
Rosa
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