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katydaqueen's picture

Dealing with a new diagnosis

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I am fairly sick right now, so I thought I would add a series of posts that I originally published on my personal blog. The posts were entitled "Redefining Myself" because that has had a lot to do with this journey. So far, I have had to deal with the emergency room twice with this disease/disorder and found that since it is a rare disease, I had to do a lot of advocacy and education. Luckily, CARES, which is the support organization for this sent me an emergency card that details my special needs. It has been 5 weeks since my diagnosis.